Autism Awareness Month April 2019 – World Autism Awareness Day April 2nd, 2019

It’s been a while since I have had a chance to write a blog post. I decided to make it a priority today. I will start off with one of my “A Day in the Life” segments. I find these most informative, as they often answer a lot of questions I wouldn’t otherwise think to address. I will then give you an insight into the progress we are making, and where we are at now.

A Day in the Life
Wednesday April 3rd, 2019

6:00 AM – My alarm goes off, and it’s time to wake up and get my workout on. I don’t go to a gym or anything, just workout at home through a program I joined.Yes, you read that right. I am on week FOUR of working out 5-7 days a week, and attempting to eat cleaner. Why? I realized that life isn’t going to slow down anytime soon, and that I NEED to take care of myself to have the energy I need to keep up with my life. I have a new mantra for what I put into my body: FUEL vs FILL. There are already so many things in life I have no control over, and even more-so for me than your average person; and my body is one thing I can control (to a point). I have plenty of reasons to be depressed and shutdown, and I sure don’t need my body working against me when keeping those things at bay. Weight loss will be a great side effect of these changes, but the REAL reason I’m doing it is to have more energy and better health. I’m also working on not smoking. (I have only had a few in the last month when I was out drinking), and I have only drank once in the last month. I’m just trying to focus on what’s good for me.

6:30 AM – Cool down, get my breakfast ready to go (waiting to use my blender until the kids wake up) and share my workout on my accountability group.

6:45 AM – Shower and get dressed.

7:00 AM – Get a bag packed for Augustus for our trip to Rapid City, SD, for therapies at LifeScape, load the car, get breakfast ready for the kids, and start waking the kids up. (Gus is usually awake in his crib already making noise and jumping and laughing.)

7:00 – 8:00 AM – Give the kids their breakfast. Gus gets breakfast in his crib sometimes, as he likes to take it slow in the morning. I usually give him a waffle and some juice in a sippy cup. He usually begs for more food after he is up and dressed, but I try to hold him off, as we have feeding therapy first thing at LifeScape. Ada comes out and eats her breakfast. Then I get Gus dressed and ready for the day-no small feat. Dressing him is like dressing a small alligator. He likes to roll over on his stomach, throw his clothes on the floor, undo his diaper tabs, take things off the walls, occasionally bite, wiggle, giggle, and think everything tickles. Then the hard part, convincing Ada to get dressed and ready for daycare. This goes one of two ways, absolute refusal, tears, and drama or absolute cooperation. Thankfully, this Wednesday was absolute cooperation. I also have to keep an eye on Gus while getting Ada dressed, as most mornings he is in the kitchen searching for food, opening drawers and cupboards, grabbing dishes out of the sink, etc. Eventually, if Dane is home, I leave Gus with him and take Ada to daycare and gas up the car, as was the case this Wednesday.

8:15 AM – Get Gus strapped into his car seat-no small feat. He wiggles and chews on the straps and I get some good cardio in.

8:25 – 9:50 AM – Drive to Rapid City. Gus usually rides in the car very quietly besides a squeal or a clap here and there. He is generally content just chewing on his chewelry necklace or snuggling his blankey. He stays awake the whole time. I struggle to stay awake EVERY time, no matter how tired I am. If I am taking him alone, I listen to an audio book on my phone, which helps a little. I drink my breakfast shake on the way and occasionally slap myself to wake up when it gets bad (yes, seriously). This Wednesday we drove through rain the whole way to Rapid City, and then it started snowing right as we pulled into LifeScape. Halfway to Rapid, I realized I forgot to take my morning pills. UGH. I’ve only been taking the same things for like 9 years, but still often forget.

9:50 – 10:00 AM – We pull into the parking lot at LifeScape. As I said, it’s snowing, Boo. I get Gus out of the car and hold his sweet little hand and grab our bag and we head inside to check in. Then, we hang out in the waiting room; and by hangout, I mean I chase Gus around. I usually always need to use the restroom once we get to LifeScape, and unfortunately, Augustus HATES the bathroom there. I feel so badly, but if I’m alone, I have to take him in there with me. He stands there in terror and panic while I try to pee as fast as I can, all the while praying he doesn’t open the door and bolt. Then comes the worst part, the toilet flush. He absolutely loathes that toilet and the noise it makes when it flushes. So, I flush and run to the door as fast as possible so we can get out of there before he has a full-on meltdown. Hand sanitizer it is. No hand washing for me in these instances. We head back to the waiting room and wait for our turn with Miss Nicole, our occupational therapist (OT). The nice thing is, we are very familiar with all of the other families in the waiting room, as we see them weekly. They are all so kind and understanding and even very helpful keeping Gus contained and somewhat under control. They also have good advice to offer, as Gus is one of the younger kids there in this time frame. Their kindness, help, understanding, and advice is priceless and immensely appreciated.

10:00 – 10:30 AMOCCUPATIONAL THERAPY with Miss Nicole
Miss Nicole comes out and greets us and gets Gus’ attention and then we head back to our obstacle course. We do an obstacle course every week consisting of different tasks for Gus to do. Before we complete our obstacle course, we practice “good sitting” and cooperation while taking our shoes off. This can be a very daunting task for Gus, as he rarely sits still, but some days he does just fine. Our obstacle course usually consists of 3-4 tasks that help with our motor skills and finishing tasks. For instance, this week we crawled through a tunnel, we jumped on a trampoline, and we threw beanbags at some blocks. Gus is required to complete each task before moving on to the next. After the obstacle course, we again practice “good sitting” and cooperation to put our shoes back on and head to feeding therapy.
FEEDING THERAPY with Miss Nicole
We head to the kitchen. Gus then climbs up onto a step stool and Miss Nicole helps him soap, wash (“make bubbles”), and rinse and dry his hands, and then throw away the paper towel used to dry his hands. He is making fairly good progress with this, as he seems to like running water coming out of faucets and will even try to do this task himself at home in the bathroom. Then, Gus is seated in a chair just his size at a table just his size. Miss Nicole sits next to him, and has the food items for the day ready and prepared and on a plate ready to go. Gus and Nicole then try the foods on the plate; some familiar/preferred, and some new/non-preferred. They then experience the texture of the food, which is huge for Gus. He has to touch food before he will try it. Miss Nicole describes the texture and consistency for Gus. Then they try the new foods by first just touching it to the lips and going from there. Then they work on drinking from an open cup. As I said, texture and consistency are EVERYTHING to Gus; so, his first instinct with any open cup is to stick his hand in it. He is getting a bit better with this. Nicole helps him hold the cup (a handle on each side) and practice bringing it to his mouth. She has to remind him to use his lips, by smacking her lips together and saying “lips” and then he successfully takes a drink. We practice this at home, too. Then, Nicole works with Gus on his utensil skills. So far, we have started with a spoon. Like I said, Gus just wants to touch everything with his hands. That’s why we are sure to let him touch the food before we move on to using the spoon. Nicole helps Gus grip the spoon and the container he is eating out of using “hand over hand”. We practice this at home, too, and it is a lot of work, but he will continue to progress. Gus has progressed in leaps and bounds when it comes to the act of eating itself. Nicole has taught him to take small bites of foods, rather than sticking a whole item in his mouth. Then, once Gus and Nicole are done with trying their foods, etc. Nicole gets Gus cleaned up, which is a challenge, as Gus does not like having his face touched. Right now, we are working on him allowing his face to be cleaned with his help. Nicole has him hold onto the wet paper towel with her, and she is sure to state what part of the face will be wiped off, and using “hand over hand” has Gus help her wipe that part of his face off until his face is clean. Then they throw away the wet paper towel and we head back to the waiting room to await the next therapy session. Gus has come a long way in being able to sit for longer periods of time, which also helps with his feeding therapy.

10:30 – 11:20 AMNORMALLY, we would have speech therapy next with Miss Jodi, but Miss Jodi was out this week. We had an hour wait until physical therapy at 11:30, so we decided to head out and come back rather than waiting in the waiting room for an hour. Gus has been in need of a haircut for a LONG time. I have cut his hair at home before using clippers, and it is never easy and never fun for either of us. In fact, we usually both end up in tears. Anyway, I decide we will brave it and stop at the Cost Cutters not too far from LifeScape and then be back for physical therapy. Let me just say, I knew it wasn’t going to be pleasant or easy, but also knew it was a necessary evil we had to endure. I feel sorry for the sweet unsuspecting lady that was lucky enough to not be busy when we walked in.
OUR FIRST OUT-OF-HOME HAIRCUT a fresh level of HELL
I first explained to the stylist that Gus had autism and did not handle having his head touched very well in general, and that this was his first time not at home, and would be a learning experience for all of us.
We first tried to see if Gus would sit on a booster in the chair alone – no go. I held him. We tried to get a cape on Gus. First of all, he took the first tissue thing they put around your neck before the cape and bit it in half. So, I held his arms down and we got the tissue thing and the cape on him. Then, we tried to get a cape on me, which was only somewhat successful. At first, he was entertained by the mirror and such. Then, the stylist had to try to get all the tiny knots out of his hair. He was not having it! He swatted at the comb and screamed and wiggled and was pissed off in general. I can’t blame him. The stylist got out the spray bottle to wet his hair down, and he absolutely hated that, too. We had some suckers in our arson, and whipped one out at this time; early in the game. That worked a little bit for a little while. He was still distressed and swiping at his hair and face. Therefore, his face was a sticky mess. Because he was moving and rubbing at his face and hair, a bunch of hair was stuck to his sucker sticky face. Then he rubs this into his eyes. Things get worse, and worse, and WORSE, and we aren’t even close to done. To sum it up, we went through 3 suckers, 3 wet washcloths, and we both had hair ALL OVER US. A toy worked to entertain him for a little bit, and that was pretty much the saving grace to get his hair even close to finished. A couple of other stylist stopped by his chair to help. They offered him a spray bottle of water to play with, some clips, you name it. He WAS NOT HAVING IT. NONE OF IT. We resorted to me having to hold his little arms down and keep him as still as I could and the stylist working as fast as she could. Keep in mind, this kid is the size of a BIG 4 year-old and isn’t even 3 yet. He cried, screamed, yelled, fought. My little man ended up so upset he nearly threw up. I decided we were done. It was good enough. We were able to get all of his hair cut except for over his ears. We just couldn’t find a way to get to those spots without him being in danger of getting hurt. The stylist was absolutely amazingly perfect throughout the entire situation. She even offered to have him come in another time when he was “having a better day” to finish up above his ears free of charge. What I didn’t have the heart to tell her was that this was a good day for Gus, one of his best. Anyway, I tipped this amazing lady $29, and that probably still wasn’t enough for the 40 minutes of hell she endured. You, lady, are a saint to this mama! I guarantee you, if I had not already been prepped and prepared for how terrible this could be, I would have had a meltdown myself. I would have cried for me and Gus. We got done with this experience just in time to head to physical therapy. We were both exhausted. I was just a bit emotional and felt spent. I truly considered cancelling his physical therapy appointment, but because we finished in time, I knew we needed to show up, and he needed to work.
DO YOU KNOW HOW BAD THIS MAKES ME FEEL? I feel terrible that this task is so hard for him and will be something he has to face for the rest of his life.

11:20 – 12:00 PM – We drive back to LifeScape. The tears are done. I push my feelings and everything aside and get ready to do what we need to do. In the waiting room, Gus sits quietly with his blankey, his favorite comfort. One of the moms we see there weekly comments that she has “never seen him so calm and quiet”. I then explained that we had just had our first out-of-home haircut experience and that I thought he was “shell shocked” by the experience, as was I. I could see the light bulb turn on in this woman’s head. She instantly understood. Do you know how good that made me feel? She patted Gus on the back and said she understood. She told me that it was the same way for her son for a long time, although he was finally better about it now (I believe he is 9?). The other familiar faces in the waiting room also shared words of encouragement and compliments on his new haircut. It takes a tribe, I tell ya, and who knows where you might find more tribe members.
PHYSICAL THERAPY
Miss Teresa comes out and gets us for physical therapy. In physical therapy, Teresa helps Gus to work on his abdominal strength, going up and down stairs, his coordination, his balance, and various other things he struggles with physically. He is also making good progress with these things; slow but sure! Teresa has to work very hard to keep him on task and does an amazing job with him. She finds different toys and things to help motivate him to do the exercises he needs to do. She definitely gets a workout in, too. He loves to be all over the place in that gym, and get into all the cupboards where all the cool things are.

12:00 – 1:30 PM – When we are done with physical therapy we head out for home. Some weeks we stop and grab some lunch. I enjoy these little lunch dates with my little man. This week, though, after so much trauma from the haircut and the questionable weather, I decided it was best we got on the road for home as soon as possible. I stopped at the Arby’s drive-thru and got something small and “healthy” for a fast food place. Then, we were on the road home. I turned on my audio book, and Gus fell asleep and slept all the way home.

1:30 – 4:00 PM – Most often, when we arrive back in Philip, I go pick Ada up from daycare right away. Since we were home a little earlier than usual, I knew it was nap time for Ada at daycare, and knew Gus would sleep a bit more; So, I went home and unloaded the car and got Gus inside and put him down in his crib after a diaper change. I then went and laid in my bed for a bit and tried to rest some, too. (WHEW!!)

4:00 – 5:00 PM – We pick up Ada and come home. Since Gus hadn’t eaten since his therapy from 10-10:30, I knew snacks and an early supper was needed. The very first thing we did was get in the bathtub since Gus had hair from his haircut all over. Ada claimed she didn’t want to take a bath and just wanted a snack. So, I got Ada a snack and got Gus in the tub. Ada eventually wandered in and wanted to take a bath, too, and jumped in with Gus. The usual bath time shenanigans went down. Gus threw cups full of water and toys out of the tub and caused a small flood. They fought over toys. They played together nicely. It was a fight to wash Ada’s hair. The usual. Gus got out first and I wrestled him into some pajamas. Then Ada got out and insisted on wearing her towel, which means before long she will be running around stark naked…her favorite. Some days, it’s not worth the fight to keep her clothed.

5:00 – 6:00 PM – Wednesday evenings kind of end up a blur for me…I made the kids some chicken nuggets and cheese quesadillas. They both happily accepted. We had the usual suppertime drama of Gus trying to steal Ada’s food after he ate his causing yelling, screaming, whining, crying, and fighting. I played referee. Then I got everyone cleaned up.

6:00 – 8:00 PM – Dane made it home sometime around 6. Amen. I didn’t tell him about Gus’ haircut in hopes he would notice. Did he notice? No. I eventually hinted at it. He still didn’t notice. I eventually just told him. Gus was just ornery and we could not keep him out of the kitchen, off of the table, out of the drawers and cupboards. It was constant. No “deep couch sitting” as those Swiffer commercials talk about. I had a snack of carrots and guacamole, which means the kids stole carrots and they ended up in various areas of the house and ground into the carpet. Gus did eat some. Then I hear Gus start to wail. Come to find out, he got his leg stuck behind the couch between the couch and the window. Dad got him out and he was happy. The TV was on and Ada decided to cuddle up with Dad. I followed Gus around the house attempting to keep him out of trouble. He finally settled down a bit before 8 after jumping on furniture, putting things he’s not supposed to in his mouth, and squealing and running around.

8:00 – 8:30 PMBEDTIME
Gus still sleeps in a crib. That’s our only way to keep him safe and contained at night. I am positive he could crawl out if he wanted to, but he doesn’t. Thank goodness. He is getting really big for his crib, but it’s still working so far. Putting Gus to bed consists of changing his diaper, finding his blankey, and taking his chewelry off. He HAS to have that blankey at bedtime. I would hate to know how many hours of Dane, Ada, and my lives have been spent looking for that blankey at bedtime. Gus is put in his crib with a sippy of water and his blankey, pillows, blanket, and stuffed animals. Gus usually stays up jumping, jumping, and jumping in his crib. He also bites his crib railing now. We have to keep his crib pulled away from the wall and his bookshelf or he will bang his crib against the wall and grab anything he can off of his bookshelf. Sometimes, he falls asleep fairly quickly (like in 30 to 60 minutes). Sometimes, he stays awake until the wee hours of the morning. We are all used to this, and thankfully he’s happy just doing his thing. Dane and I refer to it as “Gus being up partying all night”. This comes and goes and is just a part of who he is. This Wednesday was stressful enough that he was out fairly quickly. Ada insisted upon sleeping on her bedroom floor. Ok. Whatever. She was out of her room several times for various reasons.

8:30 – DAY’S END – Dane, thankfully, agreed to get some supper made. I ate supper and decided to go to bed. Ada was still wide awake. She eventually ventured into Dane and my room and laid down with me. I have no idea if or when she fell asleep. I woke up at one point and she wasn’t there. Apparently, she had ventured back to her room and went to sleep.

UPDATES/PROGRESS – shortlist
Ada turned FOUR on the 28th of March.
Gus seems to like the color green. He is interested in any green animal. Ex: Snakes, alligators, birds, frogs, etc
Gus now says “SH” when he sees fish.
Gus will sometimes whisper “go” when we use “ready…set………”
Gus says “ca” or sometimes “cat” when he sees one.
Gus is still very interested in cars and will say “car”.
We have discovered he tends to whisper when attempting to speak and not just making noise.
He says “da” and “dada” on occasion.
He is getting better about saying at least the first letter of some words.
We are still using PECS and he is making some progress with this, although it’s still not his favorite or preferred method of communicating.
We had to put a child lock on the pantry to keep Gus out of it.
He says “ssss” when he sees a snake.
He is responding to certain phrases such as “no throw”, “good walking”, “walking feet”, “no fall”, “stand up”.
He is doing a lot better with eye contact.
He is doing better having “good walking feet”, as in he doesn’t randomly lay down on the ground as often. He is realizing he needs to hold someone’s hand before taking off after we get out of the car, and will often even reach for my or Dane’s hand.
He is getting better at attempting to help when dressing him in the morning.
There is much, much, more but nothing more I have the time to explain.

THERAPY
Gus receives therapy 4 days a week.
Gus is being evaluated for Applied Behavior Analysis (ABA) therapy this coming Monday in Sioux Falls.

Gus on Thursday rocking his new haircut, comfortable at home eating a waffle.

A Day in the Life: Therapy & Haircuts

A Day in the Life

I am not being sarcastic in titling this “A Day in the Life”. This really is THE life. This is the life God knows is perfect for ME. This is MY life. This busy season I am in will not last forever. I sometimes have to remind myself of this…okay, maybe daily, but I really, truly, seriously wouldn’t have my life any other way.

I did have a frustrating and difficult day, and it’s not even over yet. I guess I’m kind of in a venting mood and figure if I blog about it, you get to choose whether you want to read it or not. It’s also a good way for me to look at how I’m managing my time etc. and an opportunity for you to see a little bit of what goes on “behind the scenes”.

8:00 AM – The kids slept in today, but only because bedtime was a bit of a disaster last night. Dad has been sick and was home later than usual this morning. Dad got the kids up and got them breakfast and Gus his allergy medicine. I got to stay in bed a few minutes longer. Hallelujah.

8:20 AM – Ada is at my bedside and wants me out of bed NOW. I try to resist to no avail. Gus wanders in and shuts the window air conditioner off and on a few times. He then gets in my closet and sits down and attempts to pull some clothes down off the hangers. Dad leaves to run some errands.

8:30 AM – I’m dressed and ready for the day. The kids have been up for half an hour now and already have toys spread throughout the living room. That’s the norm around here.

8:30 AM – 9:15 AM – Get some SeneGence (my makeup business) orders ready to mail and deliver. Ada wants to color. Get Ada’s crayons, markers, and coloring books out. She has a constant narrative while she’s coloring and begs me to color with her. I feel bad, but have to get my work done. Gus is trying to take things off of the table and counters no matter how many times I redirect him and tell him not to. He’s running back and forth between Ada’s bedroom and the living room just throwing things around. The norm…

9:15 AM – Dad shows back up with the mail and hands me a big manila envelope from LifeScape in Sioux Falls, SD. I open it up to find lots and lots and lots of paperwork and assessments to fill out. I’m overwhelmed. There is literally a message in this envelope that says “Fill out the forms and assessments enclosed in this packet. We understand completing all of these forms may feel overwhelming. We recommend starting to fill out one assessment/form a day, starting today, and you will be done in less than 1 week.” Did I start today? No. This goes right along with one of my previous blog posts, “Whelmed…A Bit Overly”. The paperwork never ends. NEVER. I also find out in this letter that my son needs another evaluation by a specialist prior to his appointment at LifeScape in Sioux Falls, SD, and that this appointment must take place more than 3 weeks before he is to be seen at LifeScape and if not his appointment at LifeScape will be cancelled and it will be months and months before he will be able to be rescheduled in. Okay…So, I start making some phone calls and leave some messages to try to get this all scheduled and sorted out. Dad leaves for work.

10:00 AM – Time to run errands. I make a list of all of our stops in hopes I won’t forget something. I take my packages to be mailed, my list, and my purse to the car before I even start getting the kids ready.

10:01 – 10:20 AM – Get the kids dressed, hair combed, shoes on, and ready to go. Ada insists on picking a pretty for her hair and has to go through all 50 pieces before deciding on one while I attempt to keep Gus from getting into them. Ada is dressed, her hair is combed, and we put a pretty in her hair. She has a dilemma over which shoes to wear and decides to wear her brother’s sandals. Whatever. As long as she has shoes on. She has about 3 different meltdowns because she wants to put them on herself but they keep falling off. In the meantime, Gus is running wild, literally, screaming and running around the house. That’s kind of his thing. I catch him and get him dressed and his shoes on. Have I mentioned that sometimes dressing him is like wrestling a 30+ pound rolling biting alligator?

10:20 – 10:35 AM – We head to the car. Ada’s shoe (well, Gus’ shoe on Ada’s foot) falls off and we have a meltdown. “Wait for me!” “Me first!” I convince her to calm down and put her shoe back on while I try to help Gus down the stairs. You see, Gus struggles with stairs, and it is something we are working on per his physical therapists’ request. He has a really hard time going down stairs and requires a lot of help. We finally get outside, Gus falls down and on his way up picks up a small rock and puts it in his mouth. Have I mentioned he puts EVERYTHING in his mouth. It’s something we have to be vigilant about constantly. I wrestle him and get the rock out of his mouth. I get him strapped into his car seat. Whew! Now Ada gets in on the other side of the car. I look at Ada and think, “Shoot, we forgot your glasses!” So, I run inside to get her glasses for her. By the time I get back to the car with her glasses, she is in tears and wailing. I ask her what’s wrong and she says she needs “baby”, which is her stuffed animal Goofy that she takes everywhere. I can also smell that Gus needs his diaper changed. I get Gus inside and get his diaper changed and find baby, but I cannot find baby’s blanket that he takes everywhere with him. I think “I hope she doesn’t notice.” Gus and I get back to the car. I buckle him in for the second time. Ada is still in tears and lights up as soon as I hand her baby. I told her baby decided it was too hot for a blanket in the car. She’s okay with that, thankfully. Let’s just hope I can find said blanket for baby before bedtime tonight.

10:35 – 11:00 – First we go through the bank drive-thru. Then we hit the post office. Then I drop something off at work. Then we need to go to the courthouse. There is road construction going on in town, so we finally find a spot right off of a busy street and get out of the car. I unstrap the kids from their car seats, and as I get Gus out he bites me in the hand. Yay! Gus likes to “bolt” as they call it and run off, so someone absolutely has to have his hand at all times or he will literally run and not look back. He still strains and tries to get away, but I keep a tight grip on his hand. Every few steps he decides just to stop and try to sit down. When that doesn’t work, he tries to twist and walk backwards, which makes him lose his balance and stumble. I lift him back up. This happens roughly 5 times just getting to the door of the courthouse from the car. Ada has to be prompted along, as she is interested in the rocks and things painted on the sidewalk and so on. We make it to the courthouse doors and now we’ve got three flights of stairs to go up. Remember what I said about Gus and stairs? Well he’s refusing to even attempt to go up the stairs even while I’m holding his hand, so we give up and I carry him. (Yes, there is an elevator, but it is old and scary and I once saw two of my friends get stuck in it.) Have I mentioned I have terrible back problems? Ada goes up the stairs with constant commentary and narrative being sure to yell loud enough it echoes. We get to the office we need to be in. I was sure to fill out my check before we got there so I wouldn’t have to let go of Gus’ hand to write a check. While waiting for my receipt, Gus is yelling and trying to escape my grip and push buttons on the fax/copy machine. Then he decides to lick the chair in front of the desk we are standing at. Ick! I’m sweating. Now it’s time to head back down the stairs. Ada demands independence and has to crawl down them backwards. I try with Gus for a while, but eventually give up and carry him. Ada has the same yelling and narrative all the way down as she did going up. Okay, Whew! We make it back to the front door of the courthouse. Ada heads out first, and Gus almost gets his hand shut in the door. We play the same try to run away game and sit down several times. Gus manages to wriggle his little hand out of mine and takes a seat in the grass and wants to stay there. I get him back up and on our way. I’m sweating. Ada has to stop and select 6 rocks to take home. I try to talk her out of it. I even try to get stern with her. It’s no good. The rocks come in the car with us. She has so many, that she needs me to hold three of them. She’s getting impatient while I’m trying to get Gus in the car without anyone getting run over.

11:00 – 11:25 AM – I need to put gas in the car. NEED to, as in the low fuel light has been on and it doesn’t even give me a number for miles left on the tank. We get to the gas station, I pump my gas, I go inside to pay. I get back to the car and decide I’ll grab a sandwich from Subway for lunch for myself and find the kids something as well. I go into Subway. By the time I’m back in the car there are tears again from Ada. She is sobbing and yelling. I ask her what’s wrong. “I was trying to hide my rocks and now one is stuck!” The rock is somehow lodged behind Gus’ car seat. She can’t get it out. I can’t get it out. I end up having to unbuckle Gus car seat to get the stupid rock out from behind it. We then head to the other gas station. Ada comes in and we grab some lunch for her and her brother and head to the counter to pay. She chose a Ninja Turtle topped juice for both her and her brother. Hers with a red tie around its eyes and Gus’ with blue. The cashier rings up her juice and hands it back to her. She kisses her juice and says “Oh, thank you. I love it so much!” Okay, that was cute.

11:25 AM – We are home from errands. Nearly an hour to do a few quick tasks, but this is my life and I must now plan accordingly. We get out of the car and all walk inside. I make another trip to the car to grab my purse and our lunch.

11:30 AM – Lunchtime! Mealtimes really, really wear on me. Ada does pretty well, other than that she likes to play with her food at times. Gus on the other hand…It doesn’t matter what he eats or how, I have to sweep and mop when it’s over. He has to be vigorously scrubbed down if not thrown in the tub. This is at every meal, people! No, it’s not his fault at all, but it is trying for me. He has a thing with textures of food and tends to crumble, squish, or tear up anything he eats. He also really likes to throw things on the floor, rub food in his hair, dump his plate on the table and rub his food into the table, and then put his plate on his head. This is every meal, people. EVERY MEAL. Yes, toddlers do this, but he is over 2 and considered a “preschooler” and we aren’t getting anywhere at all with it. Not yet, anyway. Also, when Gus drinks something, when he is done taking a drink, he launches his cup. This includes during mealtimes. So, we are still using sippy cups. We don’t have a choice. He also likes to get a big mouthful of milk, juice, water, whatever, and spit it out down his chest and stomach. Somehow during lunch, Gus gets Ada’s glasses off of her face. Ada gets them back and literally launches them across the table to me and they hit the floor. Thankfully, they didn’t break. After lunch is over, I scrub everyone down and ask them to please go play for a moment while I clean up. Gus gets out of his chair and grabs some food he has thrown on the floor and gets dirty all over again. Ugh…

11:30 AM – 12:00 PM – Lunch cleanup to include the chairs, the table, the floor, etc.

12:00 – 1:30 PM – We play, we run, we make messes, we build, we pretend, we have fun. Messy fun. Fun is almost always messy.

1:00 – 3:00 PM – I request that we have some quiet time. Gus usually takes a nap in the afternoon, but we have pictures today, so no nap. Ada plays a bit, Gus watches some television. Ada climbs all over me in an attempt to stay awake. She hasn’t taken a nap at home in a very long time. We take it easy for a while. During quiet time, I get 3 different phone calls regarding appointments and therapies for Augustus. I spend quite a bit of time on the phone.

3:00 PM – Poor Gus gets upset and cries and cries and cries. I rock him and hold him. This is one of the hard parts of everything. He cannot specifically tell me what’s wrong. I know he’s tired, and that probably has a lot to do with it. Granted, he cannot tell me what’s wrong. It breaks my heart sometimes.

3:30 PM – Grandpa and Grandma show up to help. Grandma gets Ada dressed and does her hair for me. I get Gus dressed. I mentioned before how hard it is to dress this 30+ pound rolling biting alligator. This applies here, too. It was even worse because I had to get socks on him, a button-up dress shirt, and dress shoes. I start the dishwasher as we head out the door.

4:00 PM – Grandpa and Grandma are kind enough to give us all a ride to pictures and also take me somewhere to drop a SeneGence order off. I sit down to fill out the paperwork for pictures while Grandpa tries to keep Gus contained and entertained. Gus wants to tear the building apart. He is trying to crawl under the table and get his hands into and onto anything he can. Grandpa is a trooper and keeps him corralled. Grandma handles Ada. I wish I wasn’t so flustered and sweaty and tired. I wanted to talk to some of the people I saw there getting their pictures taken as well. Sorry, Katie.

4:15 PM – Pictures! Ada does perfect. She sits still. She smiles. She’s good. Augustus is refusing to even sit. He pulls his sisters hair, pulls on her shirt. They eventually have to switch sides because Gus is taller than Ada when they are sitting. Gus is on the table sitting next to his sister and tries to lean forward off of the table. When that doesn’t work, he tries to lean backward. He just refuses to have posture in general for the picture. I’m sure they got something that will be cute, even if my arm is in it. I literally had to hold his full weight up with my forearm to make it appear as if he was sitting for the picture. I’m flustered, but it’s over.

4:15 – 5:00 PM – Grandpa & Grandma graciously take us out to supper. We deal with the drama that is simply walking down the street, the wanting to sit down, bolt, etc. Grandma finally carries Gus. We find a highchair to keep Gus corralled in. Gus falls asleep as soon as the food arrives. We eat and talk and have a good time. Gus gets some zzzz’s.

5:00 PM – Grandpa & Grandma take us home and help everyone into the house. I lay Gus on the couch, but he wakes up crying. I’m not sure why. I attempt to use the restroom in peace. HAHAHA. Ada comes in and takes her hair clip out and says “I don’t want to be pretty anymore!” and throws it on the counter. Then she strips down completely naked and takes off to find a blanket so she can go sit in the living room. Okay…

5:15 PM – I send grandpa and grandma some thank-yous and check in on my sister and niece via text message. I walk into the living room to see Gus has taken a part off of the refrigerator and it is now on the couch. I notice this as he is pulling on the curtains trying to rip them off of the wall. Then he heads to play with the vacuum.

5:45 PM – I decide since the kids are finally seemingly content that I’ll sit down and type up this blog post as a way to just relax and let go. Well…I got it typed, but it took me a long time. Ada was on the potty and had to summon me because Gus was getting into my makeup drawers. Then, Ada needed her butt wiped and Augustus got up onto the table and did something to the computer while I was taking care of said butt wiping. We had a meltdown during butt wiping because she did not want toilet paper, she wanted a wet wipe from Gus’ room. Okay…When I got back to the computer I couldn’t even get it to turn back on for the longest time. Now I have no cursor, and I can’t get it to show back up. Ugh. This was after repeatedly redirecting him from walking up and pushing buttons on the keyboard the entire time. Then Ada decided it was time to color. I took care of that for her. Then Augustus began to cry and whine. Again, he cannot tell me what he wants or needs. Because I know him, it was safe to assume that he was hungry since he fell asleep during our supper outing. This led to Ada deciding she wanted to eat again, too. Then a bit later Augustus decides to chew on some shoes. He is redirected. As I am trying to finish up, he has the piece of the fridge again and is headed to the living room. I head to the living room and he is on the couch jumping up and down and screaming and really enjoying himself. He now has no pants on…He got them off somehow. I see he got a hold of his old Diaper Genie and has thrown that into the hallway. He found a travel pack of baby wipes, too. These are on the entertainment center by the TV.

This may have been the most boring thing in the entire world to read. I understand. If you made it through, awesome! You must really like me.

Please realize none of this is meant to be complaining. It’s just a way of explaining some of the behaviors and things I deal with that are a bit different from you. It’s crazy, it’s wild, but it makes me strong. I have no choice but to be strong. Also, please don’t judge. I don’t need that. Life is hard enough. Also, please don’t judge my use of present and past tense. Yes, this is big. In the past, I would have made sure this post was read and reread and edited and reedited and then edited again. Some things just have to change, as I’m slowly learning. Bear with me all. I need and love you all.

Now, let’s see if I can get this posted without a cursor and Ada attempting to get up on my lap a grip on my forearm yelling my name…

Oh, and there goes the ENTIRE shoe rack to the ground. Loud bang. Shoes everywhere. Guess who? Yep, Augustus. And Ada wants her rain boots on.

Oh, Gus has something in his mouth!!! Ah, it was a cap off of a water bottle.

DVD player is open…he must have been playing with it.

I hope dad makes it home for bedtime. Its not looking promising.

Just a part of a day in the life. 🙂

– AMomsFaitUnbroken

Disclaimer: Times may not be exact – rough estimates. Ha. Also, I’m sure I did not document everything. This is only what my tired mommy brain can come up with as of now.

As I attempt to finish this…Augustus moves a chair at the table and gets onto the table attempting to get Ada’s crayons. He is redirected. He then decides to spin circles and attempt to take the fridge apart again.

Who knows when this will get posted. Haha.

I type over 100 words per minute people. This shouldn’t be taking me this long. Haha. I have to keep my sense of humor!

The diaper is off! Oh no. I get my arm stuck in the Diaper Genie trying to get something out of there that shouldn’t be in there. Owey!