No more crib. Gus on his new big boy bed (futon mattress) in his bedroom and big sister, Ada, checking things out.

Well, I have another milestone to share. While it may seem mundane, a post about a kid transitioning from a crib to a bed, you have to understand that for our family THIS. IS. HUGE.

My son, Augustus (Gus), is 3-years-old with diagnoses of autism spectrum disorder (ASD) and sensory processing disorder (SPD). He is a sensory seeker. He is the size of your average 5-year-old. He is very tall, very strong, and very fast and clever. Sleeping issues tend to go hand-in-hand with these diagnoses.

Up until yesterday, Gus was sleeping in a crib for his safety, and for mom & dad’s peace of mind and sanity.

Yesterday, Gus fell asleep on my lap. I carried him to his crib and put him down. I heard him making some noise in there, eventually, squealing and squawking, but that’s nothing new. I was in my bedroom putting clean laundry away when I heard a loud bang that almost sounded like someone had come into the house. I took a peek at the front door, and no one was there. Then, I heard a doorknob turning as I walked by Gus’ bedroom door on my way back to my room. I opened his bedroom door, and he ran out of the room. I instantly called my husband to tell him the day was here.

Why is this such a big deal for our family? Why were we dreading this day?

Gus does not just go to bed at bedtime. When he gets tired, he gets extraordinarily amped up and wild. I know this can be a common occurrence in younger children, but for Gus it is at another level. A whole different level. He jumps, screams, squeals, squawks, crashes into things, does headstands on the furniture, chews on things, spins, etc. This is all related to his SPD and seeking sensory input. Normally, he seeks input to feel “regulated” or “normal”. When he is tired, he seeks even more input because he is tired and feeling even less input than usual.

Along with the issues due to him seeking sensory input, he also has some sleep issues likely related to autism. He wakes up often throughout the night. When he wakes up, he usually does some jumping and squealing and sometimes reaches toys or books from his crib and plays for a bit before falling back asleep. That’s where the crib really came in handy. He had the safety of being isolated to just his crib and was not able to wander around.

I have no idea why he never tried or wanted to get out of his crib before yesterday. He has been big enough and physically able to do it for a couple of years. I, personally, think he liked being enclosed in his own little space. He is big enough now, that he is nearing the point of outgrowing his crib, so maybe it became a bit too enclosed for him. I guess I will never know.

Subsequent to all of this, I had to figure out what Gus could safely sleep on or in and how to keep him in his room at night.

I took his crib apart and out of his room right away. My husband thought I was jumping the gun, and told me as much. My thought was that I would rather have him crawling out of a bed close to the ground than jumping out of a crib to get over the rails. Mama knows best.

I do have a bed frame for a toddler bed in the basement, but it is up off the ground, and Gus is about to outgrow his toddler mattress anyway. I considered moving the bed from the spare bedroom in the basement upstairs, but decided against that. I eventually came up with what I felt to be the safest solution: a futon mattress! I figured it could be laid on the floor, therefore, no danger of falling off of a bed while jumping in the middle of the night. BINGO!

Now to figure out how to keep him in his room at night…I had a very nice video monitor with 2 cameras when both of my children were infants. I got that out only to discover the monitor was broken. Then, I remembered that I had a spare doorknob safety cover. We already have a few around the house to keep Gus from escaping outside or down into the basement without us knowing. So, I put a doorknob safety cover on the inside doorknob to his room. I felt kind of awkward about this. If I wasn’t doing it for his safety, I definitely would not have done it. Without it, he would wander throughout the house and get into all kinds of mischief and danger while the rest of the family is sound asleep.

Doorknob safety cover.

Go time…bedtime came around and my husband and I took Gus to his bed, sat him down on his mattress, said nighttime prayers, shut off the lights, and shut his door. I was anxious not being able to see him without actually going into his room and potentially waking him up. Per the norm, he jumped and crashed and squealed and did all of the things he tends to do before he goes to sleep. After it was quiet for a while, I decided to go take a peek. To my surprise, he was sitting on his bed looking at a book, calm as could be. I waited a while longer and just had to check again. On second check, he was awake and snuggled up by his mattress and against the wall. That made perfect sense to me. He likes pressure, so being able to squish himself between the mattress and the wall is probably super comfortable for him. The third and final peek, he was in that same position but sound asleep. I left his room and proceeded to give my husband a high five and an “I told you so!”.

As usual, Gus did wake up a few times in the night. I can’t say how many times, because in this household we are all so used to it that we can generally sleep through it, thankfully.

I heard him wake up this morning. Thankfully, he wakes up happy most every day. If he wakes up SUPER early, I generally just leave him in his room (crib in the past), until it is an appropriate time to have everyone awake for the day. He just spends that time squealing, jumping, playing, and looking at books. Now that he has free reign of his room, I was not sure what I would find upon opening his bedroom door in the morning. I could hear him playing with his firetruck toy this morning (sirens). I bet he is happy to be able to have access to all of is toys when he wakes up SUPER early. Anyway, I opened his bedroom door, and he was lying on his bed playing with a toy. As usual, he had pretty much all of his books off of his bookshelf, but oh well. That would have happened at some point in the day anyway, even if he had been sleeping in his crib.

Our first night in a big boy bed was a TOTAL SUCCESS. I have to be honest and say that I absolutely was not expecting as much. I was so nervous about it, but tried to keep a positive attitude. I was just so scared he would somehow hurt himself. I’m not overly confident. It’s only been one night, after-all.

Seriously, if you made it this far, thanks for reading this. If you didn’t make it this far, I don’t blame you (although, I guess you’ll never read this). I totally understand if you think I am totally ridiculous, and maybe I am. I just like to share what things are like in a life I never expected. I hope what I share not only entertains, but educates. How great would it be if everyone were more aware and tolerant of ALL disabilities and differences?

Love to you all, especially my “support circle”.

Peace & Love,

– AMomsFaithUnbroken

Big Boy Bed

Tearful, tantrum-filled goodbyes are common during a child’s earliest years. Around the first birthday, many kids develop separation anxiety, getting upset when a parent tries to leave them with someone else. Though separation anxiety is a perfectly normal part of childhood development, it can be unsettling.

https://kidshealth.org/en/parents/sep-anxiety.html

Separation anxiety rears its head most often at the 8-month to 1-year-old mark; give or take. At first, most parent’s find it unsettling, and often feel just as upset as their little one. Later on, it becomes more of an inconvenience. They all eventually grow out of it, though.

My 4-year-old daughter is most definitely a mama’s girl. She went through separation anxiety as an infant, and again pretty significantly when she first started daycare. I expected as much, and was totally prepared to deal with it the best I could. While it was hard on both of us, it also made me realize and feel just how deeply we were connected, even at her young age. There is nothing like the love for and the love from your child. Nothing.

My now 3-year-old son was/is a totally different story. As an infant, he cried when he was hungry or had a physical need, but he had no reaction or preference to who it was that fulfilled that need. He would happily sit with or engage with anyone. He never once fussed when I left him somewhere; not even his first day of daycare. He always seemed to be in his own world and really didn’t care who was around, as long as his needs were met. He never really made eye contact with anyone, and never had any reaction to someone saying his name. It was often near impossible to get his attention. As time went on, this was all definitely a BIG red flag.

We expressed our concerns to his doctor, and he was eventually diagnosed with Autism Spectrum Disorder and Sensory Processing Disorder.

Did I worry about whether my son and I truly had a connection? Of course I did. I don’t know anyone who wouldn’t have the thought at least cross their mind. I was in no way being shown that I was anything other than a service provider for him. That’s hard to type, and hard to admit, but I want to be completely transparent. It in no way changed how I felt about him though; NO WAY. He was still a part of me and his father. Although he was different from my other child, he was chosen to be mine. He needed me, and I needed him.

My son is a “seeker”. This comes along with his diagnosis of sensory processing disorder, which is a diagnosis that very often goes hand-in-hand with autism spectrum disorder. His senses do not appropriately process the input of things (ex: smell, taste, pressure, sight/light, etc.). A seeker is seeking more input; more pressure, more light, more noise, more taste. Therefore, my son loves to rub on or against anything. He slams into things. He chews on any and everything. He spins. He flaps. He squeals. He licks. He jumps and jumps and jumps. He likes to push his head against things. He likes to be squeezed (on his terms). He likes to rock back and forth. He likes to feel and squish his food. He likes to take his food out of his mouth after it’s chewed. He likes to do anything that provides him with sensory input. Therefore, he is very accepting of hugs and sitting near people for sensory input. He will even wrap his little arms around my neck and return a hug. For this, I am very thankful. He will even let me kiss his cheeks. As he becomes older and more aware, these hugs and kisses mean more and more because they are reciprocated and not just appreciated for the sensory input. In those times of struggling to feel connected, his sensory seeking was a welcome recourse.

The opposite of a “seeker” is an “avoider”. An avoider avoids all forms of sensory input and attempts to lessen input. For example, they may plug their ears or need headphones to deal with loud noises. They often have aversion to certain textures and feelings. They like to do anything that provides them an escape from sensory input.

It is actually possible to have the tendencies of both a seeker and an avoider. For instance, my son is definitely a seeker, but he does have some avoider tendencies with certain textures. He has a huge aversion to Play-Doh and putty type textures, which we have been working on. He also has an aversion to smooth textures of food such as yogurt, mashed potatoes, etc. We are working on this as well.

Now that you have all of the backstory information, I can share what I’m actually here to share…

A few weeks ago, during my son’s ABA therapy session, there was a new registered behavior technician (RBT) working with him. His ABA therapist was also present and observing the session. I was in the waiting room.

After a while, his ABA therapist asked me to come outside where they were playing on the playground equipment because my son was upset. I got outside and got his attention and he stopped crying and was no longer upset.

It turns out that his ABA therapist had left the room to go get something during the session, and once she left him alone with the RBT, he got upset. Once the therapist returned, they still could not get him calmed down, so they tried taking him outside to play without success.

For the first time ever, my son had a case of separation anxiety. He was not familiar with the RBT yet, and his therapist he sees 3x a week wasn’t around, and he realized it. You guys, THIS. IS. HUGE. My son has become aware enough that he is noticing who is around him. He missed me, and I was able to make him feel better with just my presence, which has NEVER happened in the past. This is a milestone. This is big for his safety as well. I always worried about him (still do) because he is so friendly and has ZERO stranger danger and no awareness of danger in general. We are seeing a step in the right direction now. I hope his awareness continues to improve.

The thing with autism, is that often those diagnosed reach milestones at a much slower pace IF they ever even meet certain milestones. Therefore, we never know what to expect, but it sure makes it all the more exciting when one of the milestones is hit.

Here’s to milestones and inchstones.

– AMomsFaithUnbroken

Separation Anxiety